Patient Stories

Woman With Myelofibrosis Gets Unapproved Drug With Help of Care Team

How can you advocate for yourself with a clinical trial drug if it’s later taken away? Watch as Sandra Dillon shares her story of her fedratinib trial.

Published:

MPN Therapy: Advice and Guidance for Making Treatment Decisions

How is treatment chosen and monitored for MPNs? Tune in to hear expert and patient views on treatment decisions, assessing treatment response and more.

Published:

Making a Difference: Leaders in Advocacy From the MPN Alliance Australia Share Their Story

Joining Patient Power from Melbourne, Australia, MPN patients Nathalie Cook and Ken Young share their stories of advocating for approval of medications and forming the MPN Alliance Australia.

Published:

How Do You Know When It’s Time to Switch MPN Therapies?

What physical symptoms indicate a necessary change in the course of MPN therapy? What factors do medical experts consider before making a switch? Watch now to find out.

Published:

How Getting to the Right MPN Specialist Turned One Man’s Life (and Prognosis) Around

A 71-year-old MPN patient Nelson Patz was initially treated for Lyme disease and experienced painful, severe side effects but today he feels stronger than ever. How did he get to the care he needed? Watch now as he walks us through the twists and turns of his treatment journey.

Published:

Progression in MPNs: Allaying Fears and Taking Action

In part two of our Partners series, leading expert Dr. Mark Heaney and MPN patients Ann and Jonna discuss risk stratification, progression, potential complications and actionable steps to take to access the best care available.

Published:

The Winding Road to Diagnosis: How Everyone’s MPN Journey Is Different

A highlight from our first “Partners” program in the series, geared towards those that are newly diagnosed with an MPN, patients share their journey to diagnosis.

Published:

What Patients Should Expect: An Expert Breaks Down the Procedure for a Bone Marrow Biopsy

MPN specialist Dr. Laura Michaelis explains how a bone marrow biopsy is performed, the potential risks and purpose of the procedure. Watch now to learn more.

Published:

Advice From Cancer Survivor Sajjad Iqbal on Becoming an Empowered Patient

We spoke with Dr. Sajjad Iqbal on his experience with head and neck cancer. Watch as he describes his personal perseverance and commitment to being an empowered patient.

Published:

Showing 9 of 60 programs
Advertisement
Join Our Community Register for Events Read Our Latest Blog
Advertisement

Page last updated on November 7, 2013