Patient Stories

Making a Difference: Leaders in Advocacy From the MPN Alliance Australia Share Their Story

Joining Patient Power from Melbourne, Australia, MPN patients Nathalie Cook and Ken Young share their stories of advocating for approval of medications and forming the MPN Alliance Australia.

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From Holistic Health Guru to Patient Advocate: The Importance of Respecting Evidence-Based Medicine

Myeloma patient and author Cherie Rineker shares how her perspective shifted from holistic care to becoming a myeloma treatment research advocate. Watch to learn why.

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Clinical Trial MythBusters: What Is the Value of Diversity in Clinical Trials?

Is diversity, gender, age and ethnicity important in clinical trials? Mel Mann, a 20+ year CML survivor and a a highly respected leader in the field of clinical oncology weigh in.

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How Do You Know When It’s Time to Switch MPN Therapies?

What physical symptoms indicate a necessary change in the course of MPN therapy? What factors do medical experts consider before making a switch? Watch now to find out.

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How Getting to the Right MPN Specialist Turned One Man’s Life (and Prognosis) Around

A 71-year-old MPN patient Nelson Patz was initially treated for Lyme disease and experienced painful, severe side effects but today he feels stronger than ever. How did he get to the care he needed? Watch now as he walks us through the twists and turns of his treatment journey.

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Progression in MPNs: Allaying Fears and Taking Action

In part two of our Partners series, leading expert Dr. Mark Heaney and MPN patients Ann and Jonna discuss risk stratification, progression, potential complications and actionable steps to take to access the best care available.

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The Winding Road to Diagnosis: How Everyone’s MPN Journey Is Different

A highlight from our first “Partners” program in the series, geared towards those that are newly diagnosed with an MPN, patients share their journey to diagnosis.

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Session 2 Replay - Understanding MPNs: Accessing the Best Care & Treatment Options

The recent MPN town meeting in partnership with the University of Colorado Anschutz Medical Campus featured renowned MPN experts and clinicians discussing living well with an MPN and responding to audience questions.

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What Patients Should Expect: An Expert Breaks Down the Procedure for a Bone Marrow Biopsy

MPN specialist Dr. Laura Michaelis explains how a bone marrow biopsy is performed, the potential risks and purpose of the procedure. Watch now to learn more.

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Page last updated on November 7, 2013