Living Well with Myeloproliferative Neoplasms (MPNs)

Education, Empowerment, and Learning from Others with MPNs

An audience of MPN patients and their caregivers joined us at a recent forum at MD Anderson Cancer Center in Houston to hear the latest treatment and research news, inspiring stories of people living well with MPNs, tips for effective communication with a healthcare team and more.

We are also planning events in other cities. If you haven’t already, please sign up for email updates, so we can alert you when important and inspiring videos become available and when upcoming forums are scheduled.


Anne’s Story: Why a Clinical Trial Was Right for Me

Patient advocate, Anne, was diagnosed with polycythemia vera in 2010. She shares why she decided to participate in a clinical trial and how it’s made a difference for her.


Dealing With the Expense of Treatment

Being diagnosed with cancer can be scary, but it can also be expensive. At a recent forum at MD Anderson, experts provided advice on coping with costs.


Staying Active with an MPN: Is Exercise Okay?

Staying active is important to your physical and mental health. If you have an MPN, will exercise be harmful, especially with an enlarged spleen? Experts share their advice for living well.


What Is the Significance of Blasts in the Blood for MPNs?

What are blasts? How do they factor into the progression of your MPN? Dr. Srdan Verstovsek from MD Anderson Cancer Center explains.


Finding an MPN Specialist, Seeking a Second Opinion

Dr. Srdan Verstovsek and Dr. Jason Gotlib discuss the importance of second opinions and taking charge of your care, explaining how community oncologists and MPN specialists can work together to treat your illness and for the best possible outcome.


Are Clinical Trials Safe? Experts Allay Your Fears

Are clinical trials safe? Leading researchers in the field dispel myths and discuss the risks and benefits of clinical trials.


How Long Will MPN Treatment Last?

Doctors are often asked, “How long?” when it comes to treatment for myeloproliferative neoplasms (MPNs). Drs. Jason Gotlib and Srdan Verstovsek provide some answers.


When Should MPN Treatment Begin?

When is the right time to begin treatment? Are there signs that it’s time to do something? Drs. Srdan Verstovsek and Jason Gotlib discuss what MPN patients and their caregivers need to know.


Is an MPN a Blood Cancer or a Blood Disorder?

Is an MPN a blood cancer or a blood disorder? What’s the difference? Dr. Srdan Verstovsek explains.


Why Do MPNs Require a Bone Marrow Biopsy?

Why do we need bone marrow biopsies? Drs. Srdan Verstovsek and Jason Gotlib discuss the necessities of bone marrow biopsies for MPN patients.


Why Is a Leading MPN Researcher Optimistic About Developing Treatments?

Dr. Jason Gotlib, an MPN specialist from Stanford Cancer Institute, recently sat down with Patient Power to talk about his current research focus and new agents that he is excited about for MPNs.




Guest Presenters

Chief, Section for Myeloproliferative Neoplasms, Department of Leukemia; MPN Specialist

Associate Professor of Medicine, Stanford Cancer Institute

Physician Assistant, Division of Hematology

Patient Advocate

Patient Advocate


Patient Advocate and Host

This in-person forum is sponsored by Incyte Corporation, CTI BioPharma and Geron Corporation. It is produced in partnership with The University of Texas MD Anderson Cancer Center and endorsed by MPNForum.

Leukemia & Lymphoma Society






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Page last updated on March 28, 2016