Living Well with Myeloproliferative Neoplasms

Understanding What New Options Mean for You


An audience of MPN patients and their caregivers joined us at a recent forum at City of Hope in Duarte, CA to hear the latest treatment and research news, inspiring stories of people living well with MPNs, tips for effective communication with a healthcare team and more.

Coming soon, we will post video highlights of the event along with interviews with the event panelists. We are also planning events in other cities. If you haven’t already, please sign up for email updates so we can alert you when these important and inspiring videos become available and when upcoming forums are scheduled.

Featured Video

Bone Marrow Transplants, Stem Cell Transplants: What’s the Difference?

Dr. David Snyder from City of Hope and Dr. Bart Scott from Seattle Cancer Care Alliance differentiate between the types of transplant and explain how it works, including the role of the donor and the matching process.

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Oral Parity Act: What Patients Should Know

Dr. Bart Scott from the Seattle Cancer Care Alliance discusses the Oral Parity Act and why it’s important for patients, especially those with myelofibrosis, to get involved.

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What Are the Long-Term Effects of Hydroxyurea?

Dr. Bart Scott from Seattle Cancer Care Alliance discusses hydoxyurea research and the long-term safety of this medication.

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Discontinuing Treatment with Jakafi: What to Expect

Dr. David Snyder and Dr. Bart Scott discuss the effects of discontinuing use of JAK inhibitors and why tapering off of these medications is recommended.

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What Are the Goals of Myelofibrosis Treatment?

Dr. Bart Scott from the Seattle Cancer Care Alliance shares his perspective on treatment for myelofibrosis and what he considers to be the objective of treatment.

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What’s the Magic Number? Managing Hematocrit Levels in MPNs

Dr. David Snyder from City of Hope and Dr. Bart Scott from Seattle Cancer Care Alliance discuss hematocrit levels related to polycythemia vera (PV).

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Providers Working Together: Specialists Partnering with Community Oncologists

Dr. David Snyder from City of Hope and Dr. Bart Scott from Seattle Cancer Care Alliance discuss how specialists can work closely with your community oncologist to ensure you’re getting the best care.

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What You Should Know About Alternative Medicines and Cancer Care

Dr. David Snyder and nurse practitioner Anna Antonowich-Jonsson from City of Hope discuss how complementary and alternative medicine can affect your overall care.

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MPN Treatments in Development: Telomerase Inhibitors

Dr. David Snyder from City of Hope defines telomerase inhibitors and explains the research currently taking place to understand how these agents work to treat myeloproliferative neoplasms (MPNs).

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Showing 9 of 26 programs

Guest Presenters to Include

Associate Director, Hematology & Hematopoietic Cell Transplantation; MPN Specialist


Director, Hematology and Hematologic Malignancies


Host

Host, Patient Power Co-Founder, Two-Time Cancer Survivor and Patient Advocate



This event is brought to you by the Patient Empowerment Network and City of Hope and sponsored by Incyte Corporation. It is produced in partnership with The Web Savvy Patient and is endorsed by MPNforum.


Page last updated on March 28, 2016