Living Well with Myeloproliferative Neoplasms (MPNs)

Understanding the Conditions, Treatments, Research
and That You Are Not Alone


An audience of MPN patients and their caregivers joined us at a recent forum at the Robert H. Lurie Comprehensive Cancer Center of Northwestern University to hear the latest treatment and research news, inspiring stories of people living well with MPNs, tips for effective communication with a healthcare team and more.

We are also planning events in other cities. If you haven’t already, please sign up for email updates so we can alert you when important and inspiring videos become available and when upcoming forums are scheduled.

 

Featured Video

JAK2 Negative? Understanding Gene Mutations and Treatment for MPNs

We hear a lot about JAK2 mutations and treatments for MPN patients with the mutation but what if you’re JAK2 negative? Dr. Brady Stein from Northwestern Medicine explains.

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Understanding the JAK2 Mutation

Dr. Brady Stein from Northwestern Medicine explains what JAK2 is and how this gene relates to myeloproliferative neoplasms (MPNs) as well as the role of JAK inhibitors in the treatment of MPNs.

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Do Environmental Factors Affect the Incidence of MPNs?

Dr. Alison Moliterno from Johns Hopkins Medicine explains what researchers have discovered about chemical exposure and other environmental factors related to the incidence of MPNs.

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Carolyn’s Story: Taking Control of Your Health and Connecting With an Expert

Carolyn was diagnosed with an MPN just three years ago and connected with Dr. Brady Stein, an MPN specialist. She credits a healthy lifestyle, including yoga and meditation, to living well in spite of her MPN.

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Strategies for Managing Your MPN Symptoms

Dr. Brady Stein from Northwestern Medicine and Dr. Alison Moliterno discuss causes of MPN symptoms, such as fatigue and itching, and what can be done to alleviate the issues.

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How Age Affects MPN Symptoms and Treatment Options

Dr. Alison Moliterno from Johns Hopkins Medicine and Dr. Brady Stein from Northwestern Medicine explain the role that age plays in the progression and treatment of myeloproliferative neoplasms (MPNs).

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Margo’s Story: Positivity and Hope from an MPN Patient

Margo Sorgman was diagnosed with an MPN, polycythemia vera (PV), just a few months ago at the age of 71. She shares her story of learning about the condition, meeting with Dr. Brady Stein, and how she’s doing today.

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When to Consider an MPN Clinical Trial: Is It Right for Everyone?

Dr. Brady Stein and Dr. Alison Moliterno describe the pros and cons of participating in a clinical trial and which patients may be appropriate candidates for a trial.

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Diana’s Story: A 17-Year MPN Journey

Diana Riley, diagnosed with an MPN over 17 years ago, shares her experience of being diagnosed, treatments she has had over the years, her hope for the future, and how she manages to stay so positive.

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Showing 9 of 12 programs

Guest Presenters

Assistant Professor, Department of Medicine – Hematology / Oncology Feinberg School of Medicine


Associate Professor of Medicine, Division of Hematology

Johns Hopkins School of Medicine


Host

Patient Advocate and Host



This event is brought to you by Patient Power and the Robert H. Lurie Comprehensive Cancer Center of Northwestern University and is sponsored by the Incyte Corporation. It is produced in partnership with the Robert H. Lurie Comprehensive Cancer Center of Northwestern University and endorsed by MPNForum.


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Page last updated on March 28, 2016