At 26, they told me I had an MPN and to take a pill. So I took it. At 29, they told me I had a different MPN and to take another pill. So I took it. At 38, I listened to what they had to say. And then I researched, I questioned, I consulted, I paid attention to my labs, my symptoms, my daily ups and downs, and I researched some more before I decided with them how to manage my health. “They,” of course, are the knowledgeable MPN specialists wearing crisp white coats.   Like many MPN patients, I’ve...

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Joel Blank By Carol Preston I lost the dearest of friends last month. For those of you connected with the life sciences, you may know the name Joel Blank, a Yale-educated PhD who helped develop and win FDA approval for MRI, magnetic resonance imaging. Joel also co-founded five start-up companies. But Joel’s true passion was his family: Paula, his wife of 52 years, daughters Stephanie (Jay Musoff) and Carolyn (David) Morris, and most especially his four grandchildren—Madeleine, Charlie, Gracie and Will. Joel poured his heart and soul into loving his family and creating memories. Will the rest of us do...

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Stress affects all of us in one way or another. By definition, stress is a state of mental or emotional strain or tension resulting from adverse or very demanding circumstances. A new year presents new challenges for people on top of everyday stressors. Whatever your life challenges are, there are ways to manage your stress so that it doesn’t become harmful to your health. This is especially important for those of us who have had cancer. Some experts say that is the link between cancer and stress—if stress decreases the body’s ability to fight disease, it loses the ability to...

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El doctor Josep M. Ribera es el jefe del Servicio de Hematología Clínica del Instituto Catalán de Oncología (ICO) y un especialista en el tratamiento del cáncer en personas infectadas con el virus del VIH. En esta entrevista nos explica qué tipo de cánceres son más frecuentes en estos pacientes, cómo se pueden prevenir y cómo se enfoca el tratamiento. El doctor Josep Maria Ribera. Foto del Institut Catalán de Oncología. ¿Las personas portadoras del virus VIH tienen más posibilidades de tener algunos tipos de cáncer?   Efectivamente, las personas infectadas por el VIH tienen un riesgo significativamente más alto...

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En la jornada para pacientes de mieloma múltiple que celebramos el 11 de octubre en el Hospital Vall d'Hebron de Barcelona pudimos comprobar que los pacientes están hambrientos de conocimiento sobre su enfermedad. Y que los médicos prefieren trabajar con un paciente informado, pues les pueden explicar mejor cómo le funciona el tratamiento, qué efectos secundarios está sintiendo...   En este vídeo -realizado en inglés y en español  para poder promocionarlo a nivel global- podéis ver las sensaciones de los pacientes sobre la jornada, la opinión de los médicos y cómo pudimos cumplir con nuestro objetivo: empoderar a los pacientes con...

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In short, YES. It’s the only way treatment is advanced in diseases like multiple myeloma and has resulted in FDA approval of six drugs for myeloma treatment in the last 11 years...with more coming.  We don’t have a cure yet, but I’ve seen survival averages double, even triple since I was diagnosed 20 years ago.  And how did these therapies come about? Myeloma patients participating in clinical trials. In short, there are three phases of clinical trials: I-determine maximum tolerated dosage; II-determines if the new treatment works; and III-compares new treatment to standard of care.  There are trials for all...

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I had recently retired and started to get busy with my projects when I paused briefly for a routine physical—no worries, just a quick in-and-out and back to the fun stuff. But wait. There’s more—like the doctor bringing me back in to his office, and closing the door. “We have confirmed that you have cancer. It’s not curable. It’s called multiple myeloma, and you probably have three, maybe four years left,” he said. It was March 8, 2012. Well, the next couple of days were mostly a blur of trying to figure out just what this was all about, this...

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Susan Bottega and her husband, Bob As I listened to Esther tell her story, my own came flooding back to me. My husband was always the "tough guy"—nothing was too heavy for him...literally. He was very "old school"—wanted to be the "man" of the family—and I should be the "weaker woman." Well, that never really existed—maybe only in his head. I'm an RN with many years of experience. One might think that is an advantage, but it also has its inherent difficulties. It robs you of the time to take in what is dealt to you—you instantly know where you...

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El doctor Javier Cortés, jefe del programa de Cáncer de Mama en el Hospital Vall d'Hebron (Barcelona), explica las nuevas opciones de tratamiento en pacientes con cáncer de mama metastásico. También comenta los futuros tratamientos que están en desarrollo para pacientes de cáncer de mama con la mutación BRCA.

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Interviewing a cancer researcher at the ESMO 2014 Congress I was worried about wasting away. But I am happy to tell Ringo, Paul and George that today I am 64 and feeling strong, vibrant, and not headed to living in a cottage and sitting by the fire. Too much to do! I am writing this from Madrid and the ESMO – European Society for Medical Oncology—2014 Congress, and I am happy to report there’s a lot of positive energy here. Not every new medicine being studied is panning out. Today we heard about some studies that washed out. No benefit. But...

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Page last updated on April 25, 2019